Bruce Willis‘ wife has turned her traumatic journey into a cause that’s helping others. Willis’ fans are celebrating after his wife, Emma Heming Willis, shared a moving update that left many calling it “fantastic.”
(Photo by Dimitrios Kambouris/Getty Images for Glamour)Heming Willis traveled to the California State Capitol on Monday, Aug. 18, to witness lawmakers pass a new resolution establishing Sept. 21–27 as Frontotemporal Degeneration (FTD) Awareness Week.
Heming Willis Marks Bipartisan Step for Dementia Awareness
She joined members of the Association for Frontotemporal Degeneration (AFTD) and other advocates to witness the bipartisan effort that officially recognized the week dedicated to raising awareness of the condition that Willis, 69, is living with.
She later posted photos from the event on Instagram, including one of her holding the framed resolution and another smiling with the advocacy group on the Capitol lawn.
(Photo by Frazer Harrison/Getty Images)“We are grateful to the California Legislature for recognizing FTD Awareness Week, September 21st–27th, and to the elected officials who made this possible,” Heming Willis wrote. She praised the leaders who came together “across party lines for this important bipartisan moment,” adding, “This resolution is more than symbolic, it’s a lifeline of recognition for every family touched by FTD 💙.”
Fans Praise Update as ‘Fantastic’ & ‘Stellar’
The post quickly filled with support from fans who have been following the family’s journey since Willis’ diagnosis.
Many celebrated the milestone, leaving comments like “Fantastic 🔥,” “Stellar,” and “wow!!!!” One supporter wrote, “We are grateful… this means so much for every family walking this road.”
A Caregiver’s Journey & Upcoming Memoir
Heming Willis has been open about her life as a caregiver since her husband was first diagnosed with aphasia in 2022, which was later clarified as frontotemporal dementia.
She has regularly shared emotional updates with followers, and next month she will release her memoir, The Unexpected Journey: Finding Strength, Hope, and Yourself on the Caregiving Path.
In a previous interview, she recalled the devastating moment when Willis received his official diagnosis. “On the day Bruce got his diagnosis, we left the doctor’s office with a pamphlet and a hollow goodbye. No plan, no guidance, no hope, just shock,” she revealed.
“The future we imagined simply vanished, and I was left trying to hold my family together, raise our two young daughters, and care for the man I love while navigating a disease I barely understood.”
Advocating for Families Affected by FTD
Today, Heming Willis continues to use her platform to advocate for FTD awareness and push for better resources for families. Her next goal is to encourage Governor Gavin Newsom to add a representative for FTD to the California Alzheimer’s Disease and Related Disorders Advisory Committee.
As she keeps speaking out, Willis’ fans remain deeply appreciative of her voice and the hope she brings to those affected by the disease.
Comments
‘Fantastic’: Bruce Willis Fans Celebrate His Wife’s Heartfelt Efforts for Dementia Awareness